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Discussion: Sounds terrible. Any idea w...

in: CleverSky; CleverSky > 2016-12-06

Dec 6, 2016 9:11 PM # 
Sounds terrible. Any idea when the hospital will let you go?
Dec 6, 2016 9:22 PM # 
Dude, that seriously sucks. The first part sounds a lot like my last bout with Lyme - serious chills, aches & fever even to the point of hallucinations. Body trying to cook the Lyme out? - perhaps serious enough to cause organ damage?. I've read reports of Lyme presenting in some pretty bizarre symptoms. Could likely be something else, but don't let them dismiss Lyme too readily..
Dec 6, 2016 9:37 PM # 
Best wishes for quick improvement!
Dec 6, 2016 9:40 PM # 
I'm optimistically hoping for release tomorrow evening (Wednesday), but we'll see if they're more tenacious than that. Lyme is definitely one that they're looking at, though I think at least the first test for that one came back negative, and they all seem to be thinking anaplasmosis. A million docs here, and they all keep asking me subtle questions to find out if I might be exposed to ticks. I try to cut to the chase and say, look, I live in the woods, I run through the woods, and I see deer all the time, yes, it could definitely be ticks.
Dec 6, 2016 9:52 PM # 
Yikes! Hope you/the doctors figure it out soon and that you recover completely.
Dec 6, 2016 10:56 PM # 
Recent consensus seems to be that there is a complex of tick borne illnesses out there, that they really don't understand fully - Lyme aka Borellia - is just one of them. Anaplasma, Ehrlichia and a few others I don't recall.

If memory serves, the usual ELISA test is typically the first step, but often comes back negative even in presence of Borellia. None of the tests really test for Borellia, they're looking for active antibodies to Borellia which are easier to spot. Western Blot is a bit more telling - mine was positive on the IGm, but not enough bands to be considered positive on the IGG. Things may have changed, but the C6 Peptide test was considered more indicative of actual Lyme, but not often ordered. I was definitely positive on that one. My Lyme doc also did some sort of a DNA test as well if I recall.

hope you get to the bottom of it, let me know if there is anything I can do..
Dec 6, 2016 11:22 PM # 
Lyme, anaplasmosis, erlichiosis and babesiosis are all carried by ticks and can co-infect, confusing the diagnosis since they all have some symptoms in common but not all. Rocky mountain spotted fever is also a possibility but I think it's pretty rare around here. All except babesiosis respond to doxycycline, so if you're not taking it, you probably should be. (Disclaimer: I'm not a medical doctor, but this is my simplified understanding. And I have first hand experience with anaplasmosis (last August) and probably Lyme.). Hope you're feeling better and can get this figured out.
Dec 7, 2016 12:01 AM # 
I'll be sending empathetic vibes. The hospital can feel like a prison.
Dec 7, 2016 2:42 AM # 
Glad you're doing better. I sure hope they figure out what it is.
Dec 7, 2016 4:52 AM # 
He's been on Doxycycline since Sunday evening and he's seen major improvement since then. He'll disagree, but I think that anaplasmosis is pretty likely. We are still hopeful for him to be sprung tomorrow afternoon, but it will be some time before he's out running around in the woods again. Doctor says to lie pretty low until after the first of the year. Luckily, other than missing the event at Charlie's on Saturday, it's a good time of year to not be able to orienteer. I'm also hoping that it doesn't snow here much before the first of the year, as I'm the only one shoveling for a while :-).
Dec 7, 2016 9:54 AM # 
Oy, that sounds rough. Hope they figure it out and lick it good forever. God bedring!
Dec 7, 2016 2:14 PM # 
I am on doxy, and they have PCR tests pending. I'm now in a semi-private room which is really not tolerable given the other occupant, and I'm pushing hard to go home.
Dec 8, 2016 1:43 PM # 
Ohh that sounds awful (just reading it now)! My best wishes and hope they let you go home soon.
These cases are accumulating among NE orienteers: Clint, Glen, Alar, you - others?
Dec 8, 2016 1:54 PM # 
Sorry to hear! Hope you are home soon!
Dec 8, 2016 4:20 PM # 
I'm pushing hard to go home

I once got so frustrated waiting hours to be "released" that I came really close to walking out. But then I worried that there could be insurance consequences, and thought better of it.
Dec 8, 2016 5:15 PM # 
I hadn't thought of that. Right now I have one IV line still in my arm, and I'm too squeamish to yank it myself, but other than that, I've got street clothes in a backpack, and I'm almost ready to bolt. The Attending seems to agree that my staying here isn't accomplishing anything, and they can trust me to get follow up care.

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