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Discussion: 13.5 hours

in: jennyr; jennyr > 2019-01-21

Jan 21, 2019 7:47 PM # 
..... & good that you're feeling normal in the day.

I always say, if your body wants to sleep 13 hours, it will, because it can. No one sleeps when they don't need it.

So go with it. Eg. when I first had CFS/ME, I was sleeping 16 hours a night. Seemed ludicrous - but my body needed it. Later, I dropped to 8 hours, & no way "could" I have slept 16hours!!! You body takes what it needs, at the time it needs it ....
Jan 22, 2019 5:07 AM # 
Completely agree! Just wish is could be solid, easy to attain sleep. If anything could do with more, at least a much higher quality. Whenever the quality is higher though, I tend to rest less overall and consequently don't feel great during the day.
Jan 22, 2019 5:52 PM # 
Yes - swings & roundabouts, that. Hang in there. You're doing really well. Over time, things should start to settle down (*) - and in the meantime, you'll notice patterns that emerge leading you to understand your illness better.

(*) - people who don't pace & don't respect their illness wonder why things don't start settling down.... no brainer really ;-)
Jan 22, 2019 7:52 PM # 
Thanks! Everything was also going to be a rollercoaster at the start of uni. Hopefully should settle down soon though. Fairly confident I'll recover from this crash fairly soon, and will hopefully get better from there. Last year I had a huuuuuge crash at the end of week 2, so partly glad it happened so soon and will be relatively small.
Yep, definitely understand my body much better. But feel like when I've had a big crash it changes, and I get different symptoms/limiting factors. Feel like I've learnt quite a lot in the past month or so, so at least it's going in the right direction. At the moment feel like my top energy/concentration is relatively high. But the ATP/energy recycling process is a lot lower. So I'm able to concentrate during lectures but afterwards is a struggle. Whereas last year I couldn't concentrate or keep yes open during any class, but when I crashed it was due to doing too much over 2 weeks, not a couple of hours.
(Probably said this already at some point haha)

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