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Discussion: Understanding is good

in: bhall; bhall > 2021-04-01

Apr 1, 2021 7:03 PM # 
Information and understanding. Stay strong B. You will get back.
Apr 1, 2021 8:00 PM # 
Danny Riley:
Hey, at least nobody can ever call you insincere now because everything you say and do will be wholehearted...

On a serious note, that really sucks, no way around it. Here's to hoping for the best, I suppose.
Apr 1, 2021 8:03 PM # 
Hey Bridget - really sorry to hear this but glad that you are getting the right medical support. Rob sends his love too. My sister has a congenital heart murmur and I'm sure would be willing to chat about her experiences if you wanted someone to talk to. She's lived on the intervention/non-intervention border for a while now. I hope your further investigations show something that should resolve itself with time.
Apr 1, 2021 9:04 PM # 
Oof, hope you start to heal more quickly. It is good you are finding out about things, but that can be a slow process.
Apr 1, 2021 10:43 PM # 
Hugs. That can feel like scary news. When Peter was born, his holes were so big, they actually were concerned there were no walls in his heart at all, and off he went in a semi-truck that could do surgery on the move, because West Point does not handle atypical deliveries or babies. That was not how we imagined the arrival of our second child was going to play out.

I've been to a lot of cardiologist appointments since, and talked about some of the issues you're facing, although none of Peter's sound as serious at this point. It's amazing the things your heart can do abnormally while still allowing you to function well, and it's also amazing what can heal, and what doctors can do. Here's hoping some of that amazingness can find its way into all the uncertainty you're seeing right now.
Apr 3, 2021 12:38 PM # 
Thanks everyone.

It's definitely going to continue to be an interesting process to get everything sorted, especially with a possible quarantine period after going to Boston for the MRI, then just sorting out how I'll deal with the information the MRI provides, etc. I will be keeping AP updated of course so that I can look back on the whole process, with the added benefit of keeping you all updated as well.

And Danny, that joke is much appreciated - it gave me a good laugh when I read it :)
Apr 3, 2021 3:43 PM # 
Couldn't you get the MRI locally? Your Boston doctor could order that.
Apr 3, 2021 4:39 PM # 
What a sucky situation. All of this. I hope you can get answers, soon, and start whatever process healing is going to take. Hugs!
Apr 4, 2021 5:22 PM # 
There isn't anywhere within the 10 mile radius that does MRIs that I know of so I'm going to have the quarantine discussion no matter what I do, so it feels like I might as well go to Boston to do it.

Thanks Alex!
Apr 4, 2021 10:22 PM # 
We have gone to Cooley Dickinson Hospital's facility at 170 University Drive in Amherst to get MRIs. According to Google Maps, it's 9.9 miles from Mt. Holyoke College. Seems like a lot easier.

Do you need a ride? (I assume it's OK, I've had both shots, I don't think you're contagious at this point, masks and all windows open. Still would need Gail's OK.)
Apr 5, 2021 12:27 AM # 
Oh man sucky news! I’m sorry to be reading it. But so glad so many people are around for you and we all want you to know we’re here for you and cheering you on! And as many others have said understanding things is good! The more you know the more proactive and preventing of anything further. Chin-up and big hugs.
Apr 5, 2021 3:50 PM # 
Thank you Peter for the offer, I know that my dad has followed up with you about it, and we'll let you know when we have more information if that is a viable option.

And thank you Alison! I am definitely very grateful for all the support.
Apr 5, 2021 3:59 PM # 
Bridget, at work I am directly involved in caring for patients requiring non-surgical ASD or PFO closure. Give me a call if you have questions or I can be of any help, 7322846327 Albina.
Apr 5, 2021 11:54 PM # 
Thank you Albina, I really appreciate that. I will let you know if anything comes up.

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