Training Log Archive: hughmac3In the 1 days ending Aug 17, 2019:
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Saturday Aug 17, 2019 #
9 AM
Walking 1:13:09 [3] 4.27 mi (17:08 / mi) +31m 16:45 / mi
weight:164.6lbs shoes: TOPO - Red
Easy peasy walk. Sweathog.
I realize that these walks I've been doing recently are far short of real orienteering training. There is a medical reason for this; and I'm now ready to mention it - just this once.
I've been losing hemogobin levels for the past 2.5 years, and running times and energy levels have suffered as a consequence. Doctors continued to tell me that it was nothing but "age", but we all knew better. I've finally had a complete diagnosis. Below is what I've told my family about it; and you're all my orienteering family. The news is actually good. Read on.
Here's a medical update, based on my visit Thursday to Penn's Department of Hematology/Oncology. I am diagnosed with something incurable, but very manageable, and manageable for now with nothing more than three pills of something called Ibrutinib (Imbruvica) each day. So no chemotherapy, immunotherapy or anything else life-changingly awful. I'll require weekly blood work and monthly visits to Penn for awhile. I was certainly the healthiest person Julie and I saw in the various waiting rooms today. (Besides Julie, of course)
So: I have something called Waldenstrom macroglobulinemia, which is a rare (1% - 2%) subset of Non-Hogkins lymphoma (which is itself about 50% - 60% of lymphomas. Something about me is proud to have something so rare. The many doctors at Penn see 1 or 2 of these a week; and they're very interested in it. The doctors all seem extraordinarily qualified, unanimously kind and happy to explain themselves. We had a lengthy discussion about working out to exhaustion, with lots of term defining. I will not be expecting to join Hugh this weekend on his 100 km trail run, but I am cleared to walk/jog, orienteer, cut grass, shovel walks and so forth.
The literature on all this is overwhelming and not possible for a non-physician to understand; and I'm not trying to master-manipulate anything about this. I am very happy with what I heard today and will provide all of you with any updates of consequence. Hopefully there will be none for awhile. Thank you all for caring and worrying about me, but you can remove me from the top of the worry list on your refrigerator door. I'm going to be okay.
Love,
Mac, Dad, Gramps
I realize that these walks I've been doing recently are far short of real orienteering training. There is a medical reason for this; and I'm now ready to mention it - just this once.
I've been losing hemogobin levels for the past 2.5 years, and running times and energy levels have suffered as a consequence. Doctors continued to tell me that it was nothing but "age", but we all knew better. I've finally had a complete diagnosis. Below is what I've told my family about it; and you're all my orienteering family. The news is actually good. Read on.
Here's a medical update, based on my visit Thursday to Penn's Department of Hematology/Oncology. I am diagnosed with something incurable, but very manageable, and manageable for now with nothing more than three pills of something called Ibrutinib (Imbruvica) each day. So no chemotherapy, immunotherapy or anything else life-changingly awful. I'll require weekly blood work and monthly visits to Penn for awhile. I was certainly the healthiest person Julie and I saw in the various waiting rooms today. (Besides Julie, of course)
So: I have something called Waldenstrom macroglobulinemia, which is a rare (1% - 2%) subset of Non-Hogkins lymphoma (which is itself about 50% - 60% of lymphomas. Something about me is proud to have something so rare. The many doctors at Penn see 1 or 2 of these a week; and they're very interested in it. The doctors all seem extraordinarily qualified, unanimously kind and happy to explain themselves. We had a lengthy discussion about working out to exhaustion, with lots of term defining. I will not be expecting to join Hugh this weekend on his 100 km trail run, but I am cleared to walk/jog, orienteer, cut grass, shovel walks and so forth.
The literature on all this is overwhelming and not possible for a non-physician to understand; and I'm not trying to master-manipulate anything about this. I am very happy with what I heard today and will provide all of you with any updates of consequence. Hopefully there will be none for awhile. Thank you all for caring and worrying about me, but you can remove me from the top of the worry list on your refrigerator door. I'm going to be okay.
Love,
Mac, Dad, Gramps